Hypersomnolence Japan belongs to the Japanese government approved nonprofit organisation
" Hypersomnolence Support Network Japan "
Support and care for all those who suffer from Hypersomnolence.
Our former organization was founded in 2011.
Prior to 2017 we were an unofficial support group mainly communicating via services such as LINE or Twitter and held on-line meetings for patients to gather together and talk about their issues and experiences.
Some patients created advertisement and brochures to raise awareness about Hypersomnia & Long Sleepers while others spoke with the government to convince them to include sleep disorder patients in the Japanese social welfare system.
On 2021, our current director Marina Kojima and other members have left Hypersomnia & Long Sleeper Support Organisation JAPAN and decided to set up Hypersomnolence Japan & Hypersomnolence Support Network Japan.
In 2022 we officially registered in Tokyo as an NPO (Non-Profit-Organisation) as Hypersomnolence Support Network Japan.
To support Hypersomnia and Long Sleeper sufferers by raising awareness of the condition, changing public perception, reduce discrimination, and creating linkages to medical and research services.
We are an NPO and all our participants and members are volunteers. Our organisation does not take any financial profits from our activities.
・Kleine-Levin syndrome, Recurrent Hypersomnia
・Long Sleeper Syndrome
・Circadian rhythm sleep disorders
Create website content in Japanese
Hold online support groups and events; discussing issues, challenges and experiences in Japanese
Lobby the Government to get recognition under social welfare including; handicapped license approval, financial support for medicine and reduced doctor fees in Japan
Create and distribute awareness material to schools, hospitals and health clinics in Japan
Give advice to those who are looking for a doctor in Japan
ABOUT THIS WEBSITE
This is an English website for Hypersomnlence Japan.
We are an none profit organization, raising awareness, advocating for all those who suffer from Hypersomnolence.
We support any medical conditions that causes excessive sleepiness.
Our patient support is normally limited to Japan.
However, after meeting people in other countries, I noticed that a lot of patients or online support groups in other countries do not have their posters brochures cards designs, but they are looking for one.
We have made this English website to upload our publications with editable form.
I thought it is a good way to help other international online support groups and spread sleep disorder awareness everywhere in the world.
All our designs are editable, so you can remove our logo and replace your logo, use them for free, translate into your language. Share copy upload everywhere for free.
Since we do not have anyone who speaks English as native tongue, We are not providing much information towards English speaking countries.
Our patient support towards English speaking country is currently limited to upload our posters brochures cards designs here.
But please feel free to send message to us.
Director Marina KOJIMA
We have full-time English speaking staff.
You can send your message in English.
We aim to do our hypersomnia raise awareness campaine or other activities internationally.
We are happy to have connection with overseas organisation.
*Please note, our patients support is limited to Japan.
Looking forward your contact.
You can also send Email from here